There have been soooooo many moments lately where I just have so much fun with Sam and Sya!! Yes - I still have stress - but try to look at the sweet moments - I wish we could stop Sya in her 2's for a couple years! She is so funny and goofy and LOVE how she says things. Sam is really learning how to play with her - he is still VERY aggressive and randomly does awful things to her - but in the good times he makes her laugh hysterically.
Today - right before nap time, Nasya was in the front room and I hear her tell me "No peeking mommy" - I thought about this for maybe ONE second and figured she was up to no good. Yep - I 'peeked' around the corner and sure enough - she told me the same thing and then confessed to jumping!! Naughty girl.
Friday, April 22, 2011
Sensory Fun
Saga #1: Often, we never know when/where Sam is going to freak over something. Today we were at the farm and were in the back yard. There is a grove of trees in the back and the kids wanted to go in them - but wanted me along. I thought they were scared - but come to find out - Sam wouldn't go in because of all the pine-needle tree branches in the way - so I moved them (so I thought) and still managed to scrape along one or two - on his head. THE SKY came falling down!!!!!!! He freaked out for a period of time and of course grandma doesn't always understand and asked "Now whats wrong with Sam?"
Saga #2: Then we went inside for a short bit before leaving.....Sya likes to play 'tea' so she was playing with all the mugs grandma has on her tv shelves in the kitchen. Well, grandma had just finished telling me that she doesn't dust, which I had all ready noticed the accumulation in the mugs:-) Not soon enough.....Sya had just handed a mug to Sam who has to inspect everything - what does he do? He BLOWS it out - yep - in his face & eyes!!! That was fun for about ten minutes. Luckily I had contact drops to help soothe......
Saga #3: Tuesday we went to pick up Nasya and Sam had to go to the bathroom. I could tell it was urgent so we hurried and went into the adult restroom and I knew what was about to happen. I could smell it. Someone had just come out of there and it now smelled of 'VERY upset stomach & stinky deodorizer' - YUCK for us normal folks:-) Sam walked in and came running back out - dry heaving in the hallway - I was sweating - hoping he was not going to puke!!! Whew - we made it to the other side of the building where he could attempt to go - then the problem was two other boys in there and he was telling them to stop looking at him. He eventually went.
Saga #4: Wednesday Sam came home with his 'spare' pre-school clothes on - that happens frequently. He started out the morning NOT wanting to go to preschool (actually this started the day before) as they told him that they were going to try new soup on that day. Sometimes prepping Aspergians is NOT a good thing!!!!! So - he tried a bite of new stuff and puked it up. I am always doing laundry.
We have had some great mornings - he is often waking now and able to come out of his room without yelling for us!! It is wonderful when that happens! Would be great if this were the start of something and not just a cycle - we shall see:-)
Saga #2: Then we went inside for a short bit before leaving.....Sya likes to play 'tea' so she was playing with all the mugs grandma has on her tv shelves in the kitchen. Well, grandma had just finished telling me that she doesn't dust, which I had all ready noticed the accumulation in the mugs:-) Not soon enough.....Sya had just handed a mug to Sam who has to inspect everything - what does he do? He BLOWS it out - yep - in his face & eyes!!! That was fun for about ten minutes. Luckily I had contact drops to help soothe......
Saga #3: Tuesday we went to pick up Nasya and Sam had to go to the bathroom. I could tell it was urgent so we hurried and went into the adult restroom and I knew what was about to happen. I could smell it. Someone had just come out of there and it now smelled of 'VERY upset stomach & stinky deodorizer' - YUCK for us normal folks:-) Sam walked in and came running back out - dry heaving in the hallway - I was sweating - hoping he was not going to puke!!! Whew - we made it to the other side of the building where he could attempt to go - then the problem was two other boys in there and he was telling them to stop looking at him. He eventually went.
Saga #4: Wednesday Sam came home with his 'spare' pre-school clothes on - that happens frequently. He started out the morning NOT wanting to go to preschool (actually this started the day before) as they told him that they were going to try new soup on that day. Sometimes prepping Aspergians is NOT a good thing!!!!! So - he tried a bite of new stuff and puked it up. I am always doing laundry.
We have had some great mornings - he is often waking now and able to come out of his room without yelling for us!! It is wonderful when that happens! Would be great if this were the start of something and not just a cycle - we shall see:-)
Tuesday, April 19, 2011
WOW! Conference, Amazing People, and Silly Sayings
Okay - John Deere Green again. It's been a month - but I've thought about writing everyday - am tired so will probably forget something but I guess I can always add it:-)
First - this past weekend I was taking a drink of lemon water out of a 64 oz. jug type thing from out of the fridge - the rest of the family was sitting at the table and I hear "Woa - don't drink out of that you hippie!" - Yep - Samuel! We all died laughing!! I said - "WHAT - where did you hear that???" The old man in "Up" I guess......go figure!
Just when we were thinking he was doing soooo great at pretend-play/imagination - he throws me for a loop. We had the neighbor kids over - the boy is a little older than Sam and the girl is a little older than Nasya. Perfect! We were downstairs and the neighbor kids were pretending that Sam's tool bench was an ice cream stand - Sam freaked!! If I had not been right there - he would have for sure yelled in their faces again and again that it's NOT an ice cream stand IT'S a TOOL BENCH!!! And he might have even pushed them away or gotten aggressive with the situation. Today he said that Petey (our cat) could not be a princess....(Let me explain....Sya had a princess wand and she was going around tapping us and making us a princess) Well - Petey could not be a princess because he did not have a crown 'silly'; and Sam got VERY angry when Sya tried to make him a princess....I suppose most big brothers would not like that:-)
I went to an Autism Spectrum Disorder Convention a couple weeks ago - yes two nights of uninterrupted sleep in a quiet hotel room (hmmm, something my hubby gets quite often and needs to appreciate it:-)) - but for some reason I was completely exhausted when I got home!! Probably because we went non-stop the whole time we were there!!! 7:30AM until 8:45pm - LONG days! So - the first day starts off with a nationally known 'Social Skills' speaker/therapist and we are in the front seats (not by choice - that's all that was left:-)) She was talking about how 'neurotypical' people think about how other's think about them. Read it again - it makes sense and is something that Asperger's people REALLY struggle with!! Anyway - there are 800+ people at this conference - and as she is explaining this she steps down off the stage and quickly walks directly in front of - WHO??? ME! She proceeds to talk to everyone about what everyone is thinking - "What is she doing?" Where is she going?" "How do I look?" etc. Then she says, "There is ONE person in this room who is REALLY panicking right now!!" - yep - ME! She proceeds to walk back to the stage and as my heart is pounding - I decide to check my phone for a possible text from my hubby saying "Good Morning Lover" or something like that.......Which brings me to Amazing People....
My text actually read: "Jason got Samuel an iPad!" I was in total shock - and I started getting teary-eyed. Suddenly I didn't hear a thing this fantastic speaker was saying - and was trying to figure out how to fit in the session about iPads! There were 4 different sessions I wanted to go to during that time - but I made a bee-line for the iPad! I was staring at the people who had one to see what they had on theirs - It was helpful somewhat - I did get a great handout that had top education Apps.....we are still finding out it's potential and I am sure we will be for quite some time.
I do wish we could have held on to the iPad before introducing it to Sam - we needed/need to come up with a 'routine' or more of a structured plan - we will have to backtrack - right now he thinks its' primary use is for 'incentive' for him to play games. I knew this would be an issue - For example: he knows he gets iPad time in the afternoon when Sya is sleeping - he gets 20 minutes as long as he has not been naughty. He loses 2 minutes for bad words; not sharing; 5 minutes for hitting/pinching; etc. He can also earn them back - or earn extra if he has been exceptionally good!! HOWEVER - there is a much bigger picture here - I have slowly started to prep him for this - The primary purpose of us wanting an iPad was - using Apps that teach social skills - sharing, not getting in peoples faces, not hitting, lowering his voice, how to go places, turn taking, picture schedules, etc. I found a free App where you can choose - "How To Go To a Grocery Store" "How to Go to the Doctor" "How to Behave Getting a Haircut" etc. Things we all take for granted - but Sam struggles with big time! He is VERY possessive and when he thinks something is HIS - no one else can touch it - he will hoard/hide/and guard like crazy. So - we now are working on that aspect.....will keep you posted.
Nasya - she is getting sooooo big!! Now we hear her saying sassy things like - "Cool _____" "Wait a second!" "Mmmm, delitious!" "I all better now" (just so she can go outside or bye bye) and she has decided on "Sammy" as her name for her brother:-) I didn't think he'd go for that - but he said it was fine:-) There is more to tell - but I have nothing left at the moment - going to bed......
First - this past weekend I was taking a drink of lemon water out of a 64 oz. jug type thing from out of the fridge - the rest of the family was sitting at the table and I hear "Woa - don't drink out of that you hippie!" - Yep - Samuel! We all died laughing!! I said - "WHAT - where did you hear that???" The old man in "Up" I guess......go figure!
Just when we were thinking he was doing soooo great at pretend-play/imagination - he throws me for a loop. We had the neighbor kids over - the boy is a little older than Sam and the girl is a little older than Nasya. Perfect! We were downstairs and the neighbor kids were pretending that Sam's tool bench was an ice cream stand - Sam freaked!! If I had not been right there - he would have for sure yelled in their faces again and again that it's NOT an ice cream stand IT'S a TOOL BENCH!!! And he might have even pushed them away or gotten aggressive with the situation. Today he said that Petey (our cat) could not be a princess....(Let me explain....Sya had a princess wand and she was going around tapping us and making us a princess) Well - Petey could not be a princess because he did not have a crown 'silly'; and Sam got VERY angry when Sya tried to make him a princess....I suppose most big brothers would not like that:-)
I went to an Autism Spectrum Disorder Convention a couple weeks ago - yes two nights of uninterrupted sleep in a quiet hotel room (hmmm, something my hubby gets quite often and needs to appreciate it:-)) - but for some reason I was completely exhausted when I got home!! Probably because we went non-stop the whole time we were there!!! 7:30AM until 8:45pm - LONG days! So - the first day starts off with a nationally known 'Social Skills' speaker/therapist and we are in the front seats (not by choice - that's all that was left:-)) She was talking about how 'neurotypical' people think about how other's think about them. Read it again - it makes sense and is something that Asperger's people REALLY struggle with!! Anyway - there are 800+ people at this conference - and as she is explaining this she steps down off the stage and quickly walks directly in front of - WHO??? ME! She proceeds to talk to everyone about what everyone is thinking - "What is she doing?" Where is she going?" "How do I look?" etc. Then she says, "There is ONE person in this room who is REALLY panicking right now!!" - yep - ME! She proceeds to walk back to the stage and as my heart is pounding - I decide to check my phone for a possible text from my hubby saying "Good Morning Lover" or something like that.......Which brings me to Amazing People....
My text actually read: "Jason got Samuel an iPad!" I was in total shock - and I started getting teary-eyed. Suddenly I didn't hear a thing this fantastic speaker was saying - and was trying to figure out how to fit in the session about iPads! There were 4 different sessions I wanted to go to during that time - but I made a bee-line for the iPad! I was staring at the people who had one to see what they had on theirs - It was helpful somewhat - I did get a great handout that had top education Apps.....we are still finding out it's potential and I am sure we will be for quite some time.
I do wish we could have held on to the iPad before introducing it to Sam - we needed/need to come up with a 'routine' or more of a structured plan - we will have to backtrack - right now he thinks its' primary use is for 'incentive' for him to play games. I knew this would be an issue - For example: he knows he gets iPad time in the afternoon when Sya is sleeping - he gets 20 minutes as long as he has not been naughty. He loses 2 minutes for bad words; not sharing; 5 minutes for hitting/pinching; etc. He can also earn them back - or earn extra if he has been exceptionally good!! HOWEVER - there is a much bigger picture here - I have slowly started to prep him for this - The primary purpose of us wanting an iPad was - using Apps that teach social skills - sharing, not getting in peoples faces, not hitting, lowering his voice, how to go places, turn taking, picture schedules, etc. I found a free App where you can choose - "How To Go To a Grocery Store" "How to Go to the Doctor" "How to Behave Getting a Haircut" etc. Things we all take for granted - but Sam struggles with big time! He is VERY possessive and when he thinks something is HIS - no one else can touch it - he will hoard/hide/and guard like crazy. So - we now are working on that aspect.....will keep you posted.
Nasya - she is getting sooooo big!! Now we hear her saying sassy things like - "Cool _____" "Wait a second!" "Mmmm, delitious!" "I all better now" (just so she can go outside or bye bye) and she has decided on "Sammy" as her name for her brother:-) I didn't think he'd go for that - but he said it was fine:-) There is more to tell - but I have nothing left at the moment - going to bed......
Friday, March 18, 2011
Make Believe & Koko Pea
Well, as I mulled over what to call this posting (and what to focus on since I've been wating to write for over a week now!!!) I decided to focus on Sam and his creativity. In the beginning of our search for an answer to our issues with Sam - through testing we found that he did not 'pretend' NEAR as much as a child his age should - I knew there were possible issues - but the tests really hit home. He would not pretend to put a cow in a toy bathtub - because cows do NOT take baths!!!! That is just one example. Now - he is willing to do silly things - MOST of the time. Sometimes the literal side kicks in - but for the most part - he does a great job of really using his imagination:-)
Looked up Apps for the iPad 2 - (I say 2 because of the camera capabilities - we would/could use this to create his picture schedules - we could take a pic of his OT in Hastings for example instead of using a generic pencil drawing of a 'friend' that I use now for any person .....the more specific the better...etc.) There are apps for labeling emotions; there is one that really excited me - as I think it would help him to talk to us about his day at pre-school. Right now he just gets angry and frustrated and does not want to talk about it - but the app I found would encourage him to interact on the iPad and tell about his activities.......I digress.
Last Friday - March 11 - Koko went to heaven and I also had to take Sam to the Dr. - within a two hour time period. HORRIBLE day - besides the obvious and a horrible headache - Sam was coughing terribly. By the time he saw the Dr. he had a temperature and was in bad shape. He has been sick for a week - no temp now but very bad cough and very irritable. He does not do well when he is not 100% - it seems to be magnified with him as with everything else:-) He has been very physical with his sister - one moment he is approaching her and wanting a hug (she turns away because she thinks he is going to hit/pinch her or yell in her face - so then he gets mad because she is turning away and he doesn't understand why.....) then in the next minute his is yelling in her face and shoving her to the ground. It is awful to witness and my heart aches for her sometimes!! She is tough one - yes she cries and yes she eggs some of it on - she knows what toys to touch to make him mad - and it works but much of the time she has done nothing to bring this on.
K - I've written enough. Wait.......we have an 'IEP' meeting - not sure what to think. Then we have the meeting with the school that he could be attending next year in late April. Don thinks he'll do well in Kindergarten if we send him all ready - I do not know what to do at this point. Guidance is needed. We shall see how this unfolds....TBD.
Looked up Apps for the iPad 2 - (I say 2 because of the camera capabilities - we would/could use this to create his picture schedules - we could take a pic of his OT in Hastings for example instead of using a generic pencil drawing of a 'friend' that I use now for any person .....the more specific the better...etc.) There are apps for labeling emotions; there is one that really excited me - as I think it would help him to talk to us about his day at pre-school. Right now he just gets angry and frustrated and does not want to talk about it - but the app I found would encourage him to interact on the iPad and tell about his activities.......I digress.
Last Friday - March 11 - Koko went to heaven and I also had to take Sam to the Dr. - within a two hour time period. HORRIBLE day - besides the obvious and a horrible headache - Sam was coughing terribly. By the time he saw the Dr. he had a temperature and was in bad shape. He has been sick for a week - no temp now but very bad cough and very irritable. He does not do well when he is not 100% - it seems to be magnified with him as with everything else:-) He has been very physical with his sister - one moment he is approaching her and wanting a hug (she turns away because she thinks he is going to hit/pinch her or yell in her face - so then he gets mad because she is turning away and he doesn't understand why.....) then in the next minute his is yelling in her face and shoving her to the ground. It is awful to witness and my heart aches for her sometimes!! She is tough one - yes she cries and yes she eggs some of it on - she knows what toys to touch to make him mad - and it works but much of the time she has done nothing to bring this on.
K - I've written enough. Wait.......we have an 'IEP' meeting - not sure what to think. Then we have the meeting with the school that he could be attending next year in late April. Don thinks he'll do well in Kindergarten if we send him all ready - I do not know what to do at this point. Guidance is needed. We shall see how this unfolds....TBD.
Saturday, March 5, 2011
YAY! Very Intense Week.....
Ugh, have been trying to blog all week. WOW - YAY my husband and I went to a meeting last Monday that consisted of Asperger's parents only - it was AWESOME!!! The fact that we could share stories, understand, not have to justify or defend and laugh was great. There were 7 or 8 of us and all the others had a child between the ages 11-30. So- we had 'experts' to ask our many questions and get advice on some of our issues. I am sooooo grateful to have made priceless contacts - I all ready have a list of names and numbers to call regarding therapists that might help us get a handle on Sam's anger/'violent' tendencies. Now we will all be meeting the second Sunday of the month.....YAY!
Then, I had the pleasure of meeting with our pastor's wife Wednesday. Pretty intense and great. It took us 6 years to have Samuel (as I stated in earlier blogs) and she was one of a few that were praying for a child for us. When we met this last week, she asked 'is he a 'destiny' child' - woa! Hadn't put it that way before - I do believe in healing and I am also believing for God to give my husband and I the tools to handle Sam.
STICKER CHART: well, the sticker chart is not a fantastic incentive for Sam unless he knows I have 'cheap' toys in the closet for him when he gets on a 'circle'. Hot Wheels, Dollar Tree thingys, Backugans (sp?), candy, etc. Twice in the last week he has said he does not want his sticker chart anymore - 'THROW IT AWAY!!!!' We had a mega meltdown Wednesday all afternoon - he wanated the two Hot Wheels that he knew were in the closet - he counted how many stickers he would have to get before getting them - 7. He was overwhelmed by all the 'chores' he would have to do to get the stickers (these 'chores' are hardly tiring - but to him they are!!) and flew into meltdown mode. I couldn't take it anymore after 45 minutes - not only was he in a fit, Nasya was bawling and in the middle of it and I was TIRED - so I set them out and crossed off the circles. It was an 'advance' as far as I was concerned - and that is what I told him. The next several stickers he received I just barely mentioned them to him and did not make a big deal about it until we got close to the next circle. He's so stinkin smart - he always figures a way around our methods/incentives/etc. It's not a good thing.
Those of you that have known me for a while know that I've dealt with headaches all my life. Some days are tolerable and some are unbearable. I have gone to many doctors over time and get the same lazy answer - tension. They are in the back of my head/neck area and I have just been told take ibuprofen and learn to relax. GRRRRRRRR - yes I've had stress in my life - esp. the last 5 years - but what was I stressed about when I was in elementary school???? I bit the bullet and went to a neurologist Thursday. They looked at my MRI from 2003 and think they have the answer. I have a funky bone behind my left ear - that has muscles/nerves attached to it - because it is bumped out it is pulling on those muscles and nerves - to make things worse I have whiplash from 26 years ago - my neck bone is straight. They are working against eachother - makes sense. SO - due to all the ibuprofen, Excedrine Tension/Migraine, and Fiorinol (sp?) I have taken I also get rebound headaches - therefore - I am in 'detox' this week and quitting cold turkey - UGH!!! Today - Saturday is my first day with no drugs. They have given me something else that will teach the muscles/nerves to chemically relax and hopefully this will all be the answer. I honestly cannot imagine a day without dull pain and/or horrible pain - and I really cannot imagine a day without ibuprofen!!!! I am excited to hopefully have the answer I have been needing!
Then, I had the pleasure of meeting with our pastor's wife Wednesday. Pretty intense and great. It took us 6 years to have Samuel (as I stated in earlier blogs) and she was one of a few that were praying for a child for us. When we met this last week, she asked 'is he a 'destiny' child' - woa! Hadn't put it that way before - I do believe in healing and I am also believing for God to give my husband and I the tools to handle Sam.
STICKER CHART: well, the sticker chart is not a fantastic incentive for Sam unless he knows I have 'cheap' toys in the closet for him when he gets on a 'circle'. Hot Wheels, Dollar Tree thingys, Backugans (sp?), candy, etc. Twice in the last week he has said he does not want his sticker chart anymore - 'THROW IT AWAY!!!!' We had a mega meltdown Wednesday all afternoon - he wanated the two Hot Wheels that he knew were in the closet - he counted how many stickers he would have to get before getting them - 7. He was overwhelmed by all the 'chores' he would have to do to get the stickers (these 'chores' are hardly tiring - but to him they are!!) and flew into meltdown mode. I couldn't take it anymore after 45 minutes - not only was he in a fit, Nasya was bawling and in the middle of it and I was TIRED - so I set them out and crossed off the circles. It was an 'advance' as far as I was concerned - and that is what I told him. The next several stickers he received I just barely mentioned them to him and did not make a big deal about it until we got close to the next circle. He's so stinkin smart - he always figures a way around our methods/incentives/etc. It's not a good thing.
Those of you that have known me for a while know that I've dealt with headaches all my life. Some days are tolerable and some are unbearable. I have gone to many doctors over time and get the same lazy answer - tension. They are in the back of my head/neck area and I have just been told take ibuprofen and learn to relax. GRRRRRRRR - yes I've had stress in my life - esp. the last 5 years - but what was I stressed about when I was in elementary school???? I bit the bullet and went to a neurologist Thursday. They looked at my MRI from 2003 and think they have the answer. I have a funky bone behind my left ear - that has muscles/nerves attached to it - because it is bumped out it is pulling on those muscles and nerves - to make things worse I have whiplash from 26 years ago - my neck bone is straight. They are working against eachother - makes sense. SO - due to all the ibuprofen, Excedrine Tension/Migraine, and Fiorinol (sp?) I have taken I also get rebound headaches - therefore - I am in 'detox' this week and quitting cold turkey - UGH!!! Today - Saturday is my first day with no drugs. They have given me something else that will teach the muscles/nerves to chemically relax and hopefully this will all be the answer. I honestly cannot imagine a day without dull pain and/or horrible pain - and I really cannot imagine a day without ibuprofen!!!! I am excited to hopefully have the answer I have been needing!
Saturday, February 26, 2011
The Previous Blog Title.....
Truly - he loves you so much it hurts - literally - he is not gentle by nature. Watch out - he'll come running at you and squeeze you soooo hard - sometimes it does hurt. I have to be careful not to show any unhappiness with his 'love' in that way or he will lose it. So - I just tell him how much I love him and lets try that again only more gentle!! He could literally knock some of you over if you get the pleasure of him showing you his BIG love for you!! You will not forget it - it is truly from the bottom of his heart!!
Some still need to learn to love him for who he is and not label him and not ignore him or how he is. It really hurts as his mother to see friends/family not embrace him for the amazing boy he is. If you have a tough time - imagine your child (if you have one:-)) dealing with the same issues - put yourself in our shoes - REALLY close your eyes and put yourself in our shoes and imagine people NOT interacting or NOT wanting to interact with him/her - it's a lonely sad feeling........mental exercise for the week.......
Asperger's kids/people are known for their open hearts - good or bad - Sam is definitely no exception. I have never met someone with so much love to give.....that is when he is not struggling.
Some still need to learn to love him for who he is and not label him and not ignore him or how he is. It really hurts as his mother to see friends/family not embrace him for the amazing boy he is. If you have a tough time - imagine your child (if you have one:-)) dealing with the same issues - put yourself in our shoes - REALLY close your eyes and put yourself in our shoes and imagine people NOT interacting or NOT wanting to interact with him/her - it's a lonely sad feeling........mental exercise for the week.......
Asperger's kids/people are known for their open hearts - good or bad - Sam is definitely no exception. I have never met someone with so much love to give.....that is when he is not struggling.
Friday, February 25, 2011
I love you so much - it hurts!!!!
Wow. This Tuesday night was horrible. Don was gone - I was exhausted - Sam did not want to go to sleep - there is no human being or rocking chair that can go fast enough for him!!!!!!! Sya did not take a good nap at all that day so she was beyond tired and Sam was fighting me with everything. So - from 7:30-9:20 was absolutely awful! It's a good thing I had all ready gone out to the dog and threw the ball several times to get out some anger/frustration and waited a couple hours before typing -- I was not in a good frame of mind and would have probably said things I would have regretted......So - the kids are finally in bed after almost 2 hours of tantrums and poor Sya waiting to go to bed. I was finally able to go to bed at midnight (after another waking), oh, and then I got to go to bed again at 4AM after dealing with another awful waking from 1:30-4 - seriously. Sam woke - wanting 3 different things to drink, then I wasn't making them fast enough; then he wanted to rock and of course - you guessed it - it wasn't FAST ENOUGH!!! Then because it wasn't fast enough - he threw himself on the ground and was sooo out of sorts peed all over - again. So - now while he's melting down - I am cleaning him up and leaving the floor/clothes until I can get him back in to bed. At 3:45 - he is finally willing to lay in his floor bed - IF I lay down next to him. After a bit - I QUIETLY stand - walk out and wait at the door - just in case he notices and starts yelling. Sure enough - so I go back and lay down. By the time I look at my alarm I believe it was 4:15. Then - it's 6:40 time to wake him for pre-school - and Sya joins us.
It is now Thursday - the evening was better -other than his name calling, yelling, and fits are getting much more often. It is REALLY wearing me down. I didn't get a shower due to Sya crying off and on from 10:30-midnight - I finally just slipped into bed after rocking her and hoped for the best. She woke again a couple times and again at 6AM. OH NO you don't - back to bed after a little hot cocoa - her obsession right now - other than Buzz. Back to bed she goes - Sam wakes at 6:55 - good freakin morning - for real! It was AWFUL to say the least - trying to rock fast enough - thrashing, yelling, calling me several names, hitting me ( I am soooo grateful he does not know any cuss words and I hope to keep it that way!!). All the while - I'm beyond tired once again - and TRYING to muster up enough positive energy to deter my anger - I'm not having much success - I continue to try. After getting angry at me for not making his choc. drink fast enough; after walking 'in front' of him to go to the bathroom - he is so angry that he just stops in the kitchen and yells at me "I'm just going to pee in my pants" - he rarely lies. Now - he is yelling that he doesn't want to be clean - in other words he doesn't want me to clean him up. I get his clothes off - put a towel over the puddle and attempt to calm him - after another 10 min or so - he just decides to be upset at me because I'm not smiling.....WHAT~!!! So I mustered up a fake smile - and unfortunately he cannot tell the difference. I guess fortunately - for now. He calms and tells me I'm his princess and he wants to put his pants on. His 'niceness' lasted maybe 10 minutes - only to turn into name calling; naughty words - shut up; shut it' stupid mommy; idiot; moron; I hate you; etc. etc. So hard to ignore this - I am going to exhaust myself and go back to time outs and not sure what else. Well - gotta go pick him up from therapy and hope for the best.
Ipad - in a previous blog i mentioned wanting an ipad to help with Sam - it's not a luxury - there are literally hundreds of Apps that are specifically for Autistic/Asperger's kids. Not exactly something you can do with a computer.....and take anywhere!! Would hopefully be a HUGE tool in getting him to cooperate - without having to use a whiteboard and marker/eraser all the time!
It is now Thursday - the evening was better -other than his name calling, yelling, and fits are getting much more often. It is REALLY wearing me down. I didn't get a shower due to Sya crying off and on from 10:30-midnight - I finally just slipped into bed after rocking her and hoped for the best. She woke again a couple times and again at 6AM. OH NO you don't - back to bed after a little hot cocoa - her obsession right now - other than Buzz. Back to bed she goes - Sam wakes at 6:55 - good freakin morning - for real! It was AWFUL to say the least - trying to rock fast enough - thrashing, yelling, calling me several names, hitting me ( I am soooo grateful he does not know any cuss words and I hope to keep it that way!!). All the while - I'm beyond tired once again - and TRYING to muster up enough positive energy to deter my anger - I'm not having much success - I continue to try. After getting angry at me for not making his choc. drink fast enough; after walking 'in front' of him to go to the bathroom - he is so angry that he just stops in the kitchen and yells at me "I'm just going to pee in my pants" - he rarely lies. Now - he is yelling that he doesn't want to be clean - in other words he doesn't want me to clean him up. I get his clothes off - put a towel over the puddle and attempt to calm him - after another 10 min or so - he just decides to be upset at me because I'm not smiling.....WHAT~!!! So I mustered up a fake smile - and unfortunately he cannot tell the difference. I guess fortunately - for now. He calms and tells me I'm his princess and he wants to put his pants on. His 'niceness' lasted maybe 10 minutes - only to turn into name calling; naughty words - shut up; shut it' stupid mommy; idiot; moron; I hate you; etc. etc. So hard to ignore this - I am going to exhaust myself and go back to time outs and not sure what else. Well - gotta go pick him up from therapy and hope for the best.
Ipad - in a previous blog i mentioned wanting an ipad to help with Sam - it's not a luxury - there are literally hundreds of Apps that are specifically for Autistic/Asperger's kids. Not exactly something you can do with a computer.....and take anywhere!! Would hopefully be a HUGE tool in getting him to cooperate - without having to use a whiteboard and marker/eraser all the time!
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